Ep. 23: The Story of James

 

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https://d3ctxlq1ktw2nl.cloudfront.net/staging/2020-10-19/8c0c5eb9-3e06-6b5c-dbf4-665492533139.mp3
Summary

As a former police officer, Jenny was prepared for the extreme stress of living 200 miles away from her baby in the hospital for nine-months as he fought for his life threatened by severe birth defects as a result of his extremely rare genetic syndrome (one that her 9-year-old and my 2-year-old son share).

In this episode, she hilariously recounts describes her memo-writing for each medical appointment, her bottling up of emotions to hold it together, and how refreshingly normalcy of arguments you can expect between any 9-year old boy and his mom.

james with mom and sister dressed up

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Ep. 119: Your Child’s Medical Team | How to Push Back, Ask Questions, and Build Your Dream Team w/ Dr. Kelly Fradin, MD https://d3ctxlq1ktw2nl.cloudfront.net/staging/2023-2-23/319744619-22050-1-1e2071eee4df4.m4a

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68: Dipping My Toes into Educational Advocacy

 

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39:31