Finding out I’m a genetic carrier for my son’s syndrome of CDPX1 was a very tough pill to swallow; and it has a whole slew of implications for my life.
It means I caused all of my son’s hugely challenging and life-threatening birth defects. And it also means that each of our children have a 50/50 chance of inheriting the unlucky genes.
Listen to find out what it was like to receive this life-changing news and what we’ve decided to do about it.
Nov 4 2022, 6:54am
Yes! I agree whole heartedly. :)
Nov 23 2020, 6:57am
My son has CDXP1 as well, we are in New Zealand, rough at the start, but now nearly 13 years old.
I would never give up what we have been through, it’s life changing yes but it makes you stronger.