Questions of the Month

Question of the Month

What We Wish We Could Go Back and Tell Ourselves

I asked you what you would go back and tell yourself in the early days after diagnosis/birth. And the responses were amaaaaazing. I wish I could have read through these during that hellish learning curve!!!

Question of the Month

Our Most Joyous Moments with Our Disabled Children

“You’ll experience highs and lows and joys and sadness that a lot of people will never get to.”

Question of the Month

Our Go-To Self-Soothing for Struggle

Scene: Your kiddo(s) is FINALLY in bed. You're exhausted, both psychically and emotionally. Your child had another appointment with a specialist earlier that day.

Question of the Month

What we wish our children's medical team knew

There is so much chivalry involved in parent-medical provider relationships. We may talk big behind closed doors, but there’s something about being in a doctor’s office that can mute what we really want those in charge of our children’s care to know.

Question of the Month

You Know You're a Medical Mom/Dad when...

Wow, these responses are SO relatable! Many of us deserve honorary medical certifications, I’m PRETTY sure. Can we make that a thing?

Question of the Month

The Hardest Aspects of Our Children's Diagnoses

The answers to this one spilled in. And a lot of them are pretty heavy. The unknown. The fear. The pain. Knowing you will outlive your child. The list goes on. It’s hard, it’s really freaking hard. 

Question of the Month

What Not to Say to Parents of Disabled Children (And What We Wish You'd Say Instead)

Ahhhh, what a trick. When someone is going through something so wholly different than we’ve experienced before, it’s hard to pluck up the courage to say something. What if it’s the wrong thing? What if it makes things worse? 

Question of the Month

The Most Meaningful Help Given Us

In his first year of life (and even the months leading up to his birth), we were in and out of the hospital for Kimball a lot. That was tough in and of itself. But we also had a struggling toddler and it was just short of a nightmare.

Question of the Month

Impact on Marriage

As discussed in Episode 43 about marriage + medical-complex parenting, the “statistic” that we are higher risk for divorce is actually nonexistent and even disproven.

Question of the Month

How we support siblings

Siblings are along for the ride when it comes to medically-complex and rare parenting. Their experience is different than their peers in a similar way as our experience is different from our peers.

Question of the Month

What We Want the World to Know About Medically-Complex Parenting

Medically-complex parenting is parenting in a different world than our peers. It has unique jargon, unique fears, unique challenges. And no one can truly understand it without living it.

Question of the Month

Our Favorite Self-care Practices

“Self-care”! What a buzz word, right? But it really, truly is critical.  Why is it critical? Well, what I’m about to say may surprise you: It’s critical because you are a human freaking being.

Question of the Month

The Traits We’ve Gained Because of our Children

This has definitely been one of my all-time favorite questions—the beautiful and relatable answers I received in return were such an honor to read!

Question of the Month

We See You—Words of Encouragement from One Parent to Another

It’s safe to assume most of us have been there—we’ve been overwhelmed and heartbroken by a new diagnosis or perplexing medical/developmental issues with no answers for our child.

Question of the Month

The Tools and Toys We Use

I’ve been super excited to compile a list of tried and true tools and toys that we use for our children—or really anything we’ve found helpful!

Question of the Month

Therapy Hacks

It’s easy to smile and nod when our children’s therapists tell us what to work on each day between scheduled visits. But then life happens and actually doing what they assign can be quite the feat.

Question of the Month

Appointment Day Hacks

Appointment days can be super emotionally charged days—If you know, you know.