Front Page | The Rare Life

Recent Episodes

Episode

Ep. 101: Tiffany’s Story | T18 + Advocating for Her Daughter’s Right to Live

When Tiffany was told her unborn daughter was “incompatible with life” because of her trisomy 18 diagnosis, she was immediately pressured to terminate. After deciding to continue her pregnancy, Aiyana was born alive—beating the odds.

Episode

Ep. 100: Raising Awareness | Disabled People (+ Their Parents) Do Not Owe Society Anything

So often, we feel that as parents, we need to be raising awareness about issues relating to disability. Maybe we’re sharing our lives on social media in an effort to show that our child really isn’t that different from the next and deserves inclusion.

Episode

Ep. 99: Family Planning When You Have a Medically-Complex Child w/ Amanda Griffith-Atkins LMFT + 13 Special Guests

When you have a child with a medical complexity or disability, so many things get flipped on their head. And one of those things is family planning. Something that may have seemed relatively simple and straightforward becomes muddled and complicated.

75+ Messages of Gratitude

"Girl. Your podcast is changing my life. Thank you. My husband and I both started listening and it feels like our only source of feeling understood. "

@Meg.Dawley (Listener and Parent)

"As a first time mum of a rare babe I’m still finding my feet. And listening to you and others who are little further down the path of this journey is so helpful."

Halley @theo_and_dougie (Listener and Parent)

"Your podcast has shown me this beautiful healing that comes through vulnerability and connection."

Seeley Almeda @sleeley_lake (Listener and Parent)

"Thank you so much for this podcast. It is such a joy and encouragement to listen to."

@Magdelena_Shultz (Listener and Parent)

"I am in nursing school. I LOVE your podcast as a way to connect with how some of the families and caregivers feel."

@Amberpdidit (Listener and nurse)